There are 7,000 rare diseases in the world that affect 350 million people. But covering rare diseases has been a particular challenge for journalists because the word “rare” itself implies that the topic isn’t of particular interest to mass-market news audiences.
In fact, rare disease is not particularly rare among humans – an estimated 8% to 10% of the global population has one.
After the remarkable success of last year’s program, for the second year, the National Press Foundation will offer an online conference for journalists to cover this issue. The Oct. 17-19 program is free, on the record, and open to journalists from around the world.
In addition to the online training, NPF will offer up to $3,000 in reporting grants to 20 journalists to cover travel expenses and time executing a rare diseases reporting project of their choosing. Those selected fellows will attend an additional online session on Oct. 19 with experts and coaches in narrative journalism.
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